Archives: Members

I stumbled into the world of research and healthcare, following a diagnosis of Lupus in 2014, when I was 14 years old. Since then I have become a passionate advocate for patient voice in healthcare, particularly for children and young people, who are often overlooked. Following my diagnosis, I became a participant in research studies, …

I have spent most of my working life in higher education and now work part time for the Open University. My interest in patient and user involvement comes from my own experience as both patient and carer. I was diagnosed with rheumatoid arthritis aged 26 and antiphospholipid syndrome and osteoporosis in my 30s. Over the …

I am particularly concerned with people being able to take an active role in the management of their long-term conditions, and with the appropriate treatment and support infrastructure being in place to allow for that. My main concern is to challenge inequality in health and care provision. My career started in academic research but I …

I spent over a decade in the health related voluntary sector as a volunteer (including Trustee) and employee (including Chief Executive), before stepping into a variety of Patient and Public Involvement roles, mostly within the National Institute for Health Research (NIHR), where I continue to act as a lay reviewer. I was an INVOLVE Advisory …

I was recruited into a large clinical trial in 2011 and have been involved in a broad range of Patient and Public Involvement work ever since. My area of interest is Women’s Health where I am an active member of Katie’s Team (an Advisory Group hosted at QMUL). With their support I have been active in most areas of …

I have held senior management roles in the voluntary, community and social enterprise (VCSE) sector since 2010 and am currently Deputy Chief Executive of a community interest company delivering talking therapies in the South West. In this role I lead on partnership work and patient involvement, and am passionate about ensuring the voice of the …

My background is in improvement work in the NHS and local government where I’ve worked extensively with public groups and people affected by various health conditions in order to help commissioners and clinicians understand how well services are working and what needs to change. Most recently I led a programme to improve cancer services in …

I am particularly interested in the area of self-management for people with long term conditions and hidden disabilities – both in raising public and professionals’ awareness, and in supporting and developing its practice through the timely provision of appropriate resources and support.

I have a particular interest in involving communities who are marginalised and/or not usually involved

I am currently Chief Executive of PAPAA – The Psoriasis and Psoriatic Arthritis Alliance a UK patient charity, and am also involved in a number of committees and agencies (including NICE and the MHRA) as a patient or lay member.

I have recently joined INVOLVE, and my role is to provide support and assistance to the Office Co-Ordinator & Director’s PA and to the Website and Information Technology Officer. My background lies in design, and I have already brought my skills to INVOLVE by refreshing and rebranding existing publications, creating infographics and providing assistance when …

Working with the public has always been important to me. After several years as a nurse I became the Patient and Public Involvement Officer at the  Southampton NIHR Clinical Research Facility, Biomedical Research Centre, and Biomedical Research Unit.  As part of this role I established core public involvement groups for both adults and children, as …